We are inviting you to participate in a survey about the newly developed EQ-TIPS (EuroQol Toddler and Infant Populations) questionnaire, formerly known as the Toddler and Infant (TANDI) Health-Related Quality of Life measure. The aim of this survey is to obtain feedback on the content, acceptability, appropriateness and scoring system of the EQ-TIPS to inform further international development.
The EQ-TIPS was developed for children aged 0-3 years, to be completed by proxy. The EQ-TIPS is similar in format to the EQ-5D instruments which measure the health of older children and adults across five dimensions with three or five levels of severity. They further measure general health on a Visual Analogue Scale (VAS). The EQ-TIPS was developed from the ground up and was not merely an adaptation of the EQ-5D instruments. Thus the EQ-TIPS consists of six dimensions, measured on three levels of severity, and a Visual Analogue Scale measuring general health. The six dimensions include movement, play, pain, communication, social interaction, and eating.
We would value your expert input on the EQ-TIPS descriptive system and a potential scoring system. With your consent, this information will be collated, presented and discussed within a smaller group of experts to inform further development of the instrument and for publication. For further information on the EQ-TIPS and this study, please watch the introductory presentation video below.
Participation in this online survey should take 20-25 minutes. Your participation in the study is voluntary and there will be no reimbursement for your time. Your responses will be anonymous and no identifying information will be captured, unless you leave your contact details to be contacted for further EQ-TIPS research.